Wednesday 17 August 2011

Shhhhh...

Baby is sleeping.

I have so many photos of Eleanor sleeping. There is something so adorable about babies when they sleep. I tend to keep her swaddled so she won't tug on her lines or her NG tube, and she looks so cute with her big, fat head poking out of her sausage-bundle body. Since being in hospital, I have learned that there are many other ways of putting a baby to sleep that don't involve falling asleep on the boob or screaming for an hour. It would appear that I have been doing it wrong this whole time. Amazing stuff.

She has been pretty tuckered out today and napping quite a bit. She started cisplatin yesterday afternoon and etoposide last night. The etoposide was annoying because they have to check her blood pressure every 15 minutes and it is notoriously difficult to get a proper reading on a baby, especially my little fatty. She did not appreciate being unswaddled and constant "arm hugs" from 10pm til 11pm. She is tolerating the cisplatin fairly well. They pump her full of fluid to help prevent her remaining kidney from becoming toxic, so she has gained a kilo overnight and is peeing constantly. Cisplatin is extremely nauseating. She has thrown up quite a bit today, but only when the drug is being administered; she's pretty good otherwise. Tomorrow is just etoposide and doxorubicin on Friday and Saturday. Still no word if we are moving to 3M for that drug, so I haven't unpacked us. I quite like our room; it's nice and big, but our window looks on to the tv area in the playroom. Oh well. It could be much worse! At least we aren't in the broom closet again!

All in all, we are feeling okay. I think our little break at home did us a world of good, and we are ready to take these pesky dragons on again. As the doctor pointed out yesterday, two rounds is still early in the game, and we have an opportunity to turn this around. Onwards and upwards, little bear!

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