Wednesday 22 October 2014

Hiccups

I've been delaying writing for so long because of nothing. Because of something. Somethings. Because it was easier for me to stay silent. I haven't been well and I am slowly bringing myself back. Back to health. Back to the light. Back to life. It was a long spring and a hard summer but I'm feeling much better. I want to write about my experience in depth, and I will at a later date, but for now we have had a little hiccup. A tiny hiccup that is probably nothing, but until all avenues have been explored, it's still scary. Eleanor had a routine ultrasound last week and something showed up on her liver. She's never had any issues with her liver, which I am so grateful for. It seems that once adrenal cancer hits your liver, the likelihood of living cancer free greatly diminishes. She had blood drawn and her tumour markers were nonexistent for adrenal cancer and any new liver cancer, so we are hugely relieved, and this DOES NOT look like a sick kid: 



Still, we are going in for an MRI tomorrow morning to get a closer look. If you could hold my little (big?!!!) girl in your thoughts and prayers tomorrow, I would really appreciate it. Its probably nothing. In my heart of hearts I feel it is nothing, but her Li Fraumeni means we have to take everything seriously. 



Even if she doesn't. She's too busy being a preschool-dominating, pink-wearing, Minnie-Mouse-and-princess-loving, superhero superstar!