It's official! We're going home!
We have been given approval to leave the hospital before her next round of chemo. I can't even believe it. We were originally told that we wouldn't be able to leave until after Christmas! We are still waiting for her counts to bottom out, which is taking longer than last time, but it looks like we can leave next weekend.
It's a daunting week to get through. Not only will she be without an immune system, but we have to do a CT scan of her lungs, an MRI of her belly (both scheduled for Monday morning), a GFR and an echo of her heart. Yikes! A lot of information will be gathered from these scans and will give us an idea of how to move forward. This type of cancer is very aggressive and our oncologist is anticipating that it has moved to her lungs. I am cautiously optimistic; she just doesn't seem like a baby with stage 4 cancer. I guess I don't know any babies with advanced cancer, but she doesn't seem that sick. Even the chemo can't take her down! Either way, we will know on Monday, and then home on the weekend!
Keep up the great work, little bear! We're so proud of you!
BEST NEWS!!!! The whole family reunited! xoxo
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ReplyDeleteWoohoo!! Great to see you yesterday. I'll miss you guys when you go home!
ReplyDeleteI'm starting a FB page for Eleanor - hope that's OK - just send me a note if it isn't and I'll take it down. Anyone reading this, you can find the page and "Like" it at https://www.facebook.com/pages/Support-for-baby-Eleanor/233694239998477
I'll try to keep it updated as much as possible with links to blog posts, and updates on how she's doing, but mostly it will be a great place to leave words of support and encouragement, and build some energetic momentum to help her heal! Every bit makes a difference!
It sounds like Eleanor is a fighter! All my love and thoughts are being sent to Eleanor and family right now.
ReplyDeleteSometimes, babies DO defy the odds, even when doctors seen to think there's no hope. My sister was very premature 26 years ago, and the doctors said she would have severe brain damage. She's 26 now, and perfectly fine. She was in the advanced program in school, and she's got a Master of Fine Arts degree! There is always hope!