Monday 10 December 2012

9:06 am

It is birthday Monday here in the Goudie household. At 9:06 am Eleanor officially turns 2 years of age.

My little bear.

My turkey sub.

My heart, my world, my everything.

We had a wonderful weekend full of friends and family. We partied non-stop and she loved all her new toys and kissing everyone who would let her. It's funny how every cancer-kid gets labelled a fighter, but Eleanor is really more of a lover. But she's also a fighter, so don't get any ideas!

Eleanor was remarkable in her efforts to keep up, especially after a crappy couple of days in Vancouver. Her PET scan was a bit of a disaster. She was symptomatic when she woke up Friday morning and didn't get any better as the morning went on. We couldn't give her any glucose as it would interfere with the scan. Her blood sugars remained low-ish after the scan and she struggled to wake up after the anesthesia. We had an incredible team of nurses from Children's helping us out and they decided it was in her best interest to recover at the hospital and have endocrine give her the go-ahead to go home. We took a short ambulance ride from the Cancer Agency to Children's and she happily devoured all the food we put in front of her. It took a long while to get her blood work sorted and the seal of approval from endocrine, but we finally left the hospital at 2:45pm and headed home on the 5:00 ferry.

At 7:57 am this morning, we officially got the call to stop her Mitotane. Her oncologist hasn't even reviewed her scan from Friday, but the verdict is that this drug is causing her more harm than good. The harm being her delayed development/growth and her hormones that have swung from androgen to estrogen. The Mitotane also inhibits her steroid, so she is on a higher dose than she should technically be.

I don't know what to think. Kris thinks it's good news. She doesn't need it anymore! Hooray! Huzzah! I'm feeling a little more pessimistic, a little more confused. I guess we will know more when we speak to him directly on Wednesday.

It helps to have a wonderful social media machine at my side and constant birthday messages flowing in for both Eleanor and myself. And a hot London Fog that was left in mailbox :-) I really am a very lucky old lady!


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