Clean up, aisle 4

It took a little longer than expected for Eleanor to get over her line removal surgery. We realized after the fact that she should have had an extra steroid administered during the procedure to help her body deal with the stress of recovery. Because we didn't do this, she had a small adrenal incident last week. It wasn't too bad, but enough to make Kris and me tear our hair out (hence this post). We met with a new endocrinologist this week and she confirmed it for us. She is also helping us get to the bottom of Eleanor's pubic hair situation. She might be suffering from something called precocious puberty, which is a result of her body being exposed to too much testosterone. She seems to have swung too far in the opposite direction and is now producing too much estrogen. It's not a huge deal if we catch it early; she just needs a shot once a month to keep it in check. But if she does enter puberty, her bones will fuse and her height will be extremely stunted, so we have added estrogen to her looooong list of things to test in her blood work.

Speaking of blood work, we tried to do her first draw without her line. It didn't go well. It took four people to restrain her and the lab tech was unable to get any blood from the only vein she could find. We are going to try again this week. Keep your fingers crossed for better veins!

On a cheerier note, Eleanor had her first bath without her line tonight. It was a high note after a long couple of weeks of stress.

So yeah. It was pretty awesome. We have also started physiotherapy again and she is already getting more confident with her gross motor skills. She was showing off in the tub...

Away she goes!